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Begonya Nafria Escalera

Fundacio Sant Joan De Déu
Patient Advocacy - Coordinator
Patient Advocacy Coordinator at Institut de Recerca St. Joan de Déu and Fundació St. Joan de Déu. Experience in coordinating/managing projects in clinical research on rare diseases. Coordinator of YPAG (Young Persons’ Advisory Group)-KIDS Barcelona and RareCommons platform. Coordinator of eYPAGnet (European YPAG network – accredited by EnprEMA), Member of the Course Committee of European Academy of Patients and Chair of the Educational Committee of ICAN (International Children Advisory Network).