Loading…
KS

Kristin Smedley

Curing Retinal Blindness Foundation
President
Kristin Smedley is President and Co-Founder of the Curing Retinal Blindness Foundation, the only patient organization in the world for her two sons’ blindness, CRB1 LCA/RP. Kristin has led the CRBF to raise over $1.3 Million, introduced the first ever legislation in the United States in Braille, and has moved rare eye diseases from rarely talked about to being discussed in key circles worldwide. Kristin testified at the FDA on behalf of LUXTURNA, the first ever gene therapy for an inherited disease to be granted FDA approval. Kristin recently published her first book, Thriving Blind: Stories of Real People Succeeding Without Sight. It debuted as a #1 New Release on Amazon in paperback and Kindle versions.