Mother of two and caregiver to her 15 yr old son Nicholas diagnosed with Duchenne Muscular Dystrophy at the age of four. Over the last 10 yrs, she has spent countless hours researching DMD, and connecting with doctors, researchers, and specialists. Erin and Nicholas have traveled thousands of miles to doctor’s appointments and clinical trial and study sites. In May of 2017, Erin presented to the FDA, the parent perspective of including the option for ports to be allowed in a clinical trial.