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Tuesday, June 26 • 12:00pm - 1:00pm
#244: Yes, No, Maybe: Sharing Health and Other Data for Research - Enthusiasm and Concern from the Patient Community

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Component Type: Workshop
Level: Intermediate

Technology facilitates the collection of data for research. Patients want to participate in research but have concerns about misuse of their data. We will come to an understanding of the concerns and develop a framework for addressing them.

Learning Objectives

Identify areas of enthusiasm and concern for patients in regards to the collection and sharing of health-related and other data in the course of research. Formulate frameworks for prioritizing and addressing the concerns of patients in study design, implementation, and communications. Propose next steps for future activities and collaboration.

Chair

Sara Loud, MBA, MS

Speakers
avatar for Sara Loud

Sara Loud

Chief Operating Officer, Accelerated Cure Project
As COO of Accelerated Cure Project, Sara Loud ensures delivery of research resources to scientists studying multiple sclerosis. Passionate about the integration of people into “people-powered” research, Sara combines a love of technology, business expertise, and social enterprise... Read More →

Tuesday June 26, 2018 12:00pm - 1:00pm
E and E Exhibit Hall Boston Convention and Exhibition Center 415 Summer Street, Boston, MA 02210 USA
  15: Engage-Exchange, Workshop