Development Director, The LAM Foundation
Katie is a nonprofit development professional with over 5 years experience in rare disease patient advocacy organizations. She is focused on strategic patient engagement, advocacy, fundraising, and innovative ways to amplify the patient voice. Katie holds her Master's in Public Administration...
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Director, Patient Engagement, Arthritis Foundation
Suz Schrandt, JD, is Patient Engagement Director at the Arthritis Foundation. She was previously Deputy Director, Patient Engagement for PCORI, where she helped to launch key efforts including the Engagement Rubric. Schrandt's patient engagement focus stems from her own rheumatological...
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Director, Patient Advocacy, Ultragenyx, United States
As Director of Patient Advocacy at Ultragenyx, Kristin partners with the rare disease community and strives to make a positive and meaningful difference in the lives of patients, caregivers and families. She partners closely with internal functions such as clinical development, discovery...
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